Welcome to the Twin to Twin Transfusion Syndrome (TTTS) registry.
This registry aims to collect data on the disease, diagnosis and treatment to better identify the most effective treatments for this condition. It is the only registry of its kind currently operating anywhere in the world.
It was set up by a steering committee of interested clinicians and sponsored by Twins Trust, a patient group, based in the UK. The aim of this registry is to be fully inclusive so if you, or your centre, are interested in participating, or you would like to know more then please do contact us.
The registry has been made possible through the kind contributions of 100s of families and groups. You can support the ongoing costs of the registry here. Our thanks to everyone who has supported the project, The steering committee.
- Keith Reed, CEO of Twins Trust, says thank you to those who made it happen.
- Dr. Asma Khalil, who developed the concept and the contents of the TTTS registry, explains the direction of the project.